Miracle Boy Grows Up by Ben Mattlin
How the Disability Rights Revolution Saved My Sanity

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Synopsis

Ben Mattlin lives a normal, independent life. Why is that interesting? Because Mattlin was born with spinal muscular atrophy, a congenital weakness from which he was expected to die in childhood. Not only did Mattlin live through childhood, he became one of the first students in a wheelchair to attend Harvard, from which he graduated and became a professional writer. His advantage? Mattlin’s life happened to parallel the growth of the disability rights movement, so that in many ways he did not feel that he was disadvantaged at all, merely different. 

Miracle Boy Grows Up is a witty, unsentimental memoir that you won’t forget, told with engrossing intelligence and a unique perspective on living with a disability in the United States.

 

About Ben Mattlin

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Ben Mattlin was born in New York in 1962 with spinal muscular atrophy, a congenital muscle-wasting disease. He graduated from Harvard in 1984 and is an NPR commentator and frequent contributor to many different financial magazines. He has written on disability and other topics for Self magazine, USA Today, the Los Angeles Times, and the Chicago Tribune. He has also appeared on CNN, ABC's Prime Time Live, and the E!Entertainment Network, amongst other venues, to discuss his disability-related writings. He currently lives in Los Angeles, California.
 
Published August 1, 2012 by Skyhorse Publishing. 208 pages
Genres: Biographies & Memoirs, Political & Social Sciences. Non-fiction

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Mattlin also describes his sexual proclivities at uncomfortable length—e.g., how he manages to masturbate despite his muscular degeneration and his adolescent attempts at autofellatio, “a dirty little secret of the extremely scoliotic.” It isn’t until the final pages of the book—during which Matt...

Jun 01 2012 | Read Full Review of Miracle Boy Grows Up: How the...

BC Books

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That Mattlin graduated, married, had children and a career is partly due to the actions of activists that, often, he was completely unaware of at the time.

Oct 03 2012 | Read Full Review of Miracle Boy Grows Up: How the...

BC Books

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Ben Mattlin was born in 1962 with Spinal Muscular Atrophy, a condition which is usually fatal to babies if the symptoms show up before six months.

Oct 03 2012 | Read Full Review of Miracle Boy Grows Up: How the...

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