Prader-Willi Syndrome by John Hernandez-Storr
How Parents and Professionals Struggled and Coped and Made Genetic History

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"Intimate knowledge of Prader-Willi Syndrome bizarre and baffling landscape permeates every page, Alternately written from the perspectives of the afflicted and those struggling to save them, the result is a seamless blend of case history, detective story, and medical mystery, often heartbreaking, occasionally hopeful, always full of heart."
-BlueInk Review

Synopsis

On March 28, 1971, Fausta Deterling gave birth to a boy. Curtis was floppy and had little appetite. When he was five months old, a doctor told his parents that Curtis had Prader-Willi syndrome. He told them that when Curtis was a toddler he would develop a huge and life-long appetite. He told them Curtis would become quite obese, would not be 100 percent mentally, and would not live past his twenties. And there was no cure or treatment.

Fausta and her husband, Gene, did not accept this. Neither did a small band of professionals. As they struggled with the syndrome, another group of researchers discovered clues that PWS had a genetic cause. Their search deepened into a worldwide genetic mystery, whose resolution would change the textbooks.
 

About John Hernandez-Storr

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Published May 2, 2016 by John Hernandez-Storr. 256 pages
Genres: Professional & Technical, Health, Fitness & Dieting, Science & Math. Non-fiction
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BlueInk Review

Excellent
on Jan 18 2016

"Intimate knowledge of Prader-Willi Syndrome bizarre and baffling landscape permeates every page, Alternately written from the perspectives of the afflicted and those struggling to save them, the result is a seamless blend of case history, detective story, and medical mystery, often heartbreaking, occasionally hopeful, always full of heart."

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