The Right to Try by Darcy Olsen
How the Federal Government Prevents Americans from Getting the Lifesaving Treatments They Need

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The president and CEO of the Goldwater Institute makes a convincing case that the slow pace of the Federal Drug Administration's development and approval process for new medications is needlessly costing lives...High-quality advocacy certain to stir debate.
-Kirkus

Synopsis

Why should you need the government’s permission to save your own life?

Jenn McNary’s two sons, Max and Austin, were diagnosed with Duchenne muscular dystrophy—a fatal disorder that leads to muscle degeneration and eventually death. In a cruel and unnecessary twist, Max received access to a clinical trial; Austin didn’t. As a result, Max was able to get out of his wheelchair and play on his school soccer team while Austin continued to deteriorate until he could not even feed himself.

The FDA takes as long as fifteen years to approve a new drug, demanding near-absolute proof of effectiveness before allowing commercial distribution. But this ignores the urgent plight of millions of terminally ill Americans who have run out of approved options—and are running out of time. These patients are not looking for a 100 percent guarantee that a treatment will work for them. They are looking for a fighting chance.

Why can’t they have that chance? Why don’t they have the right to try . . . the right to save their own lives?

Author and activist Darcy Olsen, president of the Goldwater Institute, tells the remarkable story behind the Right to Try movement, the national campaign to give dying Americans access to cutting-edge treatments that are under study but still years away from receiving the FDA’s green light. The men, women, and children featured in these pages are our own family members, friends, and neighbors. Their heartbreaking, triumphant, and inspirational stories prove the necessity for Right to Try laws. Because everyone deserves the Right to Try.

 

About Darcy Olsen

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Darcy Olsen is the president of the Goldwater Institute, a leading national policy and litigation organization which has changed hundreds of laws in the last several years and is leading the national campaign to pass Right to Try laws. She is the winner of the prestigious 2014 Bradley Prize and a frequent guest on Fox. She lives in Phoenix, Arizona.
 
Published November 10, 2015 by Harper. 339 pages
Genres: Health, Fitness & Dieting, Political & Social Sciences, Professional & Technical, Law & Philosophy. Non-fiction
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on Sep 03 2015

The president and CEO of the Goldwater Institute makes a convincing case that the slow pace of the Federal Drug Administration's development and approval process for new medications is needlessly costing lives...High-quality advocacy certain to stir debate.

Read Full Review of The Right to Try: How the Fed... | See more reviews from Kirkus

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